The value of families’ experiential knowledge

In addition to utilizing the experiential knowledge from people with intellectual disabilities themselves, it is important to understand the lived experiences of their family members and others close to them. When family members are directly involved in supporting the person with intellectual disabilities, their care and support can be individually and effectively tailored to them. Therefore, it is essential to increase family involvement and to make optimal use of parents’ individual experiences. The AWVB collaborates with stakeholders to develop a support programme for family members and professionals, based on knowledge from scientific research, including the PhD research.